Multiple sclerosis energy levels counting spoons

Multiple sclerosis energy levels counting spoons

My birthday is in 2 days. November 22. I haven’t paid much attention to it with everything else going on, could you blame me? It’s tough to go through and pack 11 years worth of stuff. It’s tougher when you have MS. I could hire people to pack and move for me but that’s a lot of money, so I’ve been doing a little each day with my aide. I have only so much stamina in me each day so each day all depends on how I feel, what I’ve done and what else I need to do.

I have already packed my 3 bad areas which were 2 storage places and my computer desk. Those were major now I’m working on inside the apartment. There is so much to do and less than 6 weeks to do it. Unfortunately, physical therapy wipes me out the most so I only went once last week because packing is the priority. I can’t be wiped out for hours now. I only can pack when I have help. I can’t do it by myself. My aide is here Monday-Friday so I rest over the weekends. Physical therapy may need to take a back seat for a little while until things are settled. Plus I still need to cook each week.

Remember the spoons analogy? I wake up with a certain number of spoons that vary each day. Each activity takes away a spoon or more and you try to keep spoons until the end of the day so you have energy to complete tasks. Cooking, physical therapy, and showering take 1-5 spoons a day depending on how I felt that morning to start. If I wake up with only 10 spoons of energy, you can see how fast I can deplete. It’s not an easy task and it varies everyday for no reason. It makes everyday life difficult but now adding in packing, it is a very big balancing act. Carefully calculated, adjusted and/or cancelled. Being that I am the type of person that likes to get things done, the cancelled part of this equation is difficult for me. This is where I tend to push it and overdo it. I’ve made myself limit things to small areas that I should be able to accomplish each day and get everything packed in time. I still have a long way to go.

Two more days until my birthday. Three more until Thanksgiving. One month until Christmas. The year is over in 41 days. Crazy!!! The days used to go slow, they seem to be speeding up. Is it just me?

2 thoughts on “Multiple sclerosis energy levels counting spoons

  1. Just try to hang in there–This too will pass !! I remember as a little girl saying to my grandmother “I wish it was summer!”. She said, ” The older you get, the faster time passes-don’t wish away a second of it !”. SO TRUE ! I was too young to take heed !!

    Rest when you can !

    Thinking of you !!
    Polly

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