Yesterday was a rough day. I was very uncomfortable and tired. It happens but the good news is I knew WHY it was happening. I slept a lot yesterday. I took a 2 hour nap on the couch with my fur babies on either side. Even with the nap I still went into bed at 9:30pm. I feel less fatigued today, I don’t feel that weight in my bones but my skin is still sensitive. I HATE steroids. This was…
I had to be honest and let others know in case it happens to you, I haven’t been feeling great since my Ocrevus infusion on Wednesday. I expected the day of the infusion to feel lethargic and tired because of the Benadryl coming through the IV, but I am still feeling that way. It is Friday morning and anyone with MS will understand me when I say my bones feel so heavy. My skin is super sensitive which is definitely…
The appointment was called for 11 but as I’m walking out my door, I received a call that they still didn’t have the pre-medicine orders from my doctor. After that call was made, yet again, they informed me I can come at 12:00. I got there and it just took time to get things rolling. Except for a TV and a comfy chair, it was an institutional type of room. However, the people were very nice. I knew exactly what…
Last Monday I had my routine mammogram. I never worry because to me, I already had multiple sclerosis, that was more than enough. However, I do have to admit, that my fingertips have no tactile feeling so I worry that I may not feel anything on a self breast exam. Last week I was so preoccupied and stressed dealing with the approval of my Ocrevus infusion that when I got a message from my doctor about the mammogram, I was completely…
Sure, it is scheduled, but the approval isn’t there. I received a call the other day from the insurance company that the expedited review has been denied. So I called the insurance company. I was told that the infusion was still under review. Under review for what??? When I tried to get Rituxan approved, the denial was because Rituxan wasn’t a FDA approved drug for multiple sclerosis. The denial letter went on to tell me based on my history that…
This was the second most popular blog of the year on http://Www.multipleexperiences.org. I was on Rituxan for over a year and would have preferred to continued however for insurance reasons, I’m changing to Ocrevus. My first infusion is scheduled for August 7th. This blog is just a good inside look at the pharmaceutical world of chronic disease. I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug…
