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Tag: NYS Medicaid

Getting a new caseworker

Getting a new caseworker

I haven’t slept in three nights because of the fireworks. My poor Minx gets so worked up from the noise. I even gave him medication. With every explosion outside came a round of barking from the inside. Therefore when the idiots were still setting things off at 1am, my Minxy was barking like crazy. It is difficult to sleep through that. I thought to myself, ok, I’ll wake up, workout and nap this afternoon. I did my workout, which was…

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My week finding agencies

My week finding agencies

Well after my blog on Wednesday, I figured I better lighten things up a little. I just don’t know if I have anything light to talk about. It’s not that anything is necessarily bad but it isn’t that great either. I had terrible spasticity this week. My legs have been super stiff. It has made getting up out of my chair and bed difficult. It is very difficult to move when one or both of your legs don’t want to…

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Intake with Suffolk Independent Living Organization

Intake with Suffolk Independent Living Organization

Yesterday started with a bang, and not a good one. Unfortunately, I heard a crash of what only could be a car hitting something. I got up quickly to look, startled. Well you can imagine how that went. I realized quickly that in case of an emergency, don’t ever count on me. In my startled reaction to the sound, I got up and fell. It took me some time to get myself up. Thankfully, there were many people from my…

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It never ends…Ocrevus infusion postponed continued

It never ends…Ocrevus infusion postponed continued

So yesterday morning I’m sitting here and I get a call from my insurance that the expedited review for ancillary services, a.k.a. the infusion, has not been deemed necessary. Therefore the review will be conducted at the usual standard time as per policy. WTF???? I thought the problem was they didn’t order the drug? Turns out they never got authorization to get the drug or to administer it. Authorizations have to go to my doctor. My first step started when…

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Starting the process of getting an aid

Starting the process of getting an aid

Good morning and happy Friday to everyone.  Most of the time I dictate my blog through the voice on my iPad. Then I go back and correct any mistakes, which are usually a lot and sometimes hilarious. What obviously never comes across is my voice inflections when I’m speaking, probably why my humor doesn’t come across. I guess you can’t hear sarcasm in words that you read. Oh well, back to my topic, which this morning is, that I started…

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I hate insurance companies

I hate insurance companies

Here we go again. Another battle with the insurance. After I went to through the the battle with them and filed every appeal possible for my Rituxan, I was denied. Insurance denied saying it was not approved for multiple sclerosis. Although we filed all the necessary paperwork and they did approve it for others they would not approve it on my case. What is more than frustrating and this is that the new drug that is coming out for MS,…

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A year since I was put on disability

A year since I was put on disability

Should I say Happy Anniversary to myself? It was an after work doctors appointment January 21, 2016 when he said “ENOUGH”. He knew since the summer before I was getting worse, I was the one in denial. On January 22, 2016 I called my job and said my doctor is putting me out on disability and I never was back.  I kept pushing and pushing to continue to work. I was working part in the building and part at home,…

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Medicaid insurance logistical nightmare

Medicaid insurance logistical nightmare

Two weeks ago I called my doctor to request a referral for an orthopedic. For over a month now I’ve been having a problem with my shoulder. It’s a very strange,  I don’t know what I could’ve done to it. It mostly doesn’t hurt during the day unless it’s in a specific position. However every night I go to sleep it throbs and wakes me up because it’s killing me. I can count on my hands how many times I…

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Medicaid meeting time well spent

Medicaid meeting time well spent

Today I’m writing to you live from the Nassau County Medicaid Office. So far my assistant aka my daughter and I have been sitting here an hour and 2 I repeat 2 people were called. I made a fair hearing appointment a few weeks ago when my Managed Medicaid plan denied my therapists’ bills. Well that wasn’t good we called, I looked at my benefits they told me I was good to go and then all the bills were denied….

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NYS Medicaid

NYS Medicaid

This is one topic I really didn’t want to discuss but I know I can’t avoid. First let me explain I’ve handled Medicaid applications for my job for 13+ years before I stopped working.  I know the NYS Medicaid long term care system well. I should back up an explain Medicaid. There are two types of long term Medicaid.  One called chronic care and one called community care.  The chronic care is for someone in a rehab or nursing facility…

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