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Tag: national multiple sclerosis society

Covid vaccination for people with MS

Covid vaccination for people with MS

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I wrote a blog giving you information that my specialist in NYC has given to all their patients. Covid vaccination information for MS patients. The National MS Society has also released information https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance. There is a great article on vaccines in general with various MS drugs that I definitely encourage everyone to look at https://www.mslivingwell.org/2020/11/28/vaccines/. Basically you can find anything out in the vaccine and MS by doing a Google search. For all of the Ocrevus people out there, I…

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My handicap van update

My handicap van update

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I thought I’d write a blog on the update on my van. Unfortunately, I did not get as much in grants as I was hoping for which was somewhat disheartening. It was my own fault because I just got a number in my head that was delusional. I was able to secure $5,300 in grants from the MS Foundationhttps://msfocus.org/ and the MS Hope Foundationhttp://www.mshopefoundation.org/. I was denied from the Chive Charity https://chivecharities.org/ and the National Multiple Sclerosis Society doesn’t do…

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Trying to get funding for a disability van

Trying to get funding for a disability van

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I have to admit, I never expected the handicap vehicle to be quite so much money. I’m glad at least when I started this journey I did start at the dealership first. I have a foundation from multiple sclerosis that is helping me but they certainly didn’t have enough funds for the entire van, or anywhere near it. The multiple sclerosis foundation only helps with the purchase of the conversion and they certainly don’t cover the full cost. I’ve done…

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Housing help for those with Multiple Sclerosis

Housing help for those with Multiple Sclerosis

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To recap my situation, I had asked my condo for a permanent parking spot close to the main door. This was because it was the only door I could enter that didn’t have steps, which I can’t do, and wasn’t too far for me to walk. It was granted. Then due to other condo residents requesting the same thing, they gave 5 other people spots. The non-disabled residents had an uproar. Now they voted to revoke ALL the reserved spots….

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Multiple sclerosis past, present and future

Multiple sclerosis past, present and future

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I’m a very big fan of Flipboard . I use it a lot,  I post my blog, I read articles and I find recipes. I save all my recipes in a magazine, you could click on my recipe magazine right down the side of this blog. Yesterday I came across a great article about The Story of Multiple Sclerosis and It’s Major Milestones http://flip.it/udMksk. I just want to highlight the milestones. 1824 1st clinical description of multiple sclerosis 1868 Multiple sclerosis…

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When your MS progresses your assistive devices progress too

When your MS progresses your assistive devices progress too

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As multiple sclerosis progresses, so does your assistive needs. The first thing I got was the handicap parking permit. I’ve had this for many, many years. I got this early in my disease when I use to work in NYC and had to take a train. The parking at the station was insane and even back then walking that long distance in a rush to catch a train was very difficult. I was never able to run or skip again…

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The Internet for multiple sclerosis

The Internet for multiple sclerosis

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I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…

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