Some days are better than others. I walked the hallway again yesterday and it was so hard. Ok, it was hard the first time I did it but it was so much harder yesterday. My right leg, which is normally the leg that gives less issues, was very difficult to move. It was difficult from the hip flexor. I had problems moving the leg forward. My left leg, which normally drags, has difficulty clearing a step without my foot impeding…
I am very weak. My legs can’t hold me up for long. PT has been working on just getting me up and standing. I never thought something so simple would be so hard. Let me tell you, it is so hard. I try to sway back and forth shifting my weight as I hold onto a walker. I had to sit down again because I have no endurance. One day I was able to get back up once. The other…
I am still here, barely. I got home from the rehab last Wednesday. It has been rough!! I fell 4 times within the first 12 hours. My strength was significantly worse than I realized. My legs couldn’t hold me up. I realized they didn’t have the strength to push from a seated position to a stand. I was bed bound. This dark cloud came over my world. I refused to talk to anyone. I cried. I am always fighting multiple…
Last year at this time, my first blog post said under construction. I hope you enjoyed my weeks worth of revelations of the past year of blog posts. This week, I thought it was gonna be more of a downtime week, didn’t turn out that way. My aide started on Wednesday. Originally I asked for three days three hours a day. The recommendation of the nurse evaluator was for seven days. My case manager and I decided on three days…
“Exercise is essential not just for overall well-being, but also to help manage symptoms of multiple sclerosis (MS). In fact, exercise might even slow progression of the disease, according to a 2012 review published in Therapeutic Advances in Neurological Disorders.” This was according to everyday health. The National Multiple Sclerosis Society says basically the same thing and adds, “An exercise program needs to fit the capabilities and limitations of the individual. It may need to be adjusted as changes occur in…
This one is not for my family. This is a bad one, so I give you the advance warning. Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…
I’m certainly better than yesterday, I should start the blog off with that. Sometimes you hide how you feel inside because you don’t want to live feeling like that. Yes my life is hard. Yes things are a challenge. Yes it’s a sucky disease. Most people know this. I don’t have to reiterate that fact each day, so I try very hard not to. However it is the truth to MY life and it is like this 24 hours a…
I was asked today by my physical therapist how are you? I am sure anyone with a chronic disease thinks this is a loaded question. Actually a good friend of mine called me the other day and said, “I’ve learned so much about you and what you deal with on a daily basis from reading your blog. I never knew. Some of it makes me laugh, some makes me feel so bad that I can’t help you, but I never…
