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Happy Anniversary Multiple Sclerosis

Happy Anniversary Multiple Sclerosis

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Valentine’s Day weekend, 19 years ago, I was moving into the house my ex-husband and I just bought. Actually we bought the house back in December but we did work on the house so we didn’t officially move in until Valentine’s Day weekend.  It was supposed to be a romantic thing first weekend in the house. I started having difficulty walking that weekend. Boxes and more boxes throughout the house. Furniture deliveries coming throughout the day that Saturday. I’m sure…

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You don’t look sick….

You don’t look sick….

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Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot.  I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…

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Putting multiple sclerosis in the right perspective

Putting multiple sclerosis in the right perspective

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During my treatment yesterday, there was a man sitting next to me that I started talking to. The conversation started after he had to take a phone call and felt bad that he thought he was disrupting his neighbor.   He apologize for the call and explained his brother-in-law was going in for triple bypass surgery today. He was sitting next to me getting Chemotherapy.   I politely explain no need for apologies, I totally understood . From there we…

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Rituxan infusion day

Rituxan infusion day

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Third time I’m being infused with Rituxan. I was able to change my infusion place back to my home town instead of NYC. Saves at least 3 hours of the day. I got here at 9am and it’s 9:57 IV is just beginning. Why an hour? Well they didn’t get the doctors orders. Now it is a federal holiday today so getting in touch with the doctor wasn’t going to be easy. Her office at Mount Sinai in NYC is…

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