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Tag: assistive devices for MS

Giving names to my assistive devices

Giving names to my assistive devices

I’m happy to report I have had no strange incidents with my wheelchair, Houdini, this week. My wheelchair might be trying to kill me. However it is only Wednesday and I’m hoping I haven’t spoken too soon. I name all my things: cars, assistive devices, even the TV (although that name was lifted from an episode of Friends). My first rollator name was JJ Walker, the character that said “Dynamite” on Good Times. It was a very heavy sturdy walker…

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Back home

Back home

I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…

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“Fear” of walking with canes from the rollator

“Fear” of walking with canes from the rollator

My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…

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My bedroom equipment

My bedroom equipment

My accessory equipment, is far from limited to walking. I’ve been having problems in the bedroom to, and I’m not talking about sex. I’ve been having issues getting on my bed because I can’t get my knee high enough to get myself on. It’s also too high for me to just sit down and get on like that. That’s not all!!! I can’t sit up in the bed, because my core muscles are becoming less and less existent. This creates…

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Multiple Sclerosis drugs, vitamins and therapies

Multiple Sclerosis drugs, vitamins and therapies

I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…

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My 20 year anniversary with multiple sclerosis

My 20 year anniversary with multiple sclerosis

It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…

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Things that go bump in the night

Things that go bump in the night

I had this post written title one other time. I wrote it about being convinced I heard Boomer, my English Bulldog, after he passed away. I realize now that the things that go bump in the night is usually me. The biggest obstacle I’ve had, since I moved in the condo, is I sleep on the other side of the bed then I use to for the last 25 years. I always slept on the left side which, for all…

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Despite my MS, I am very happy

Despite my MS, I am very happy

I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….

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The reality of my situation

The reality of my situation

It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…

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Snowfall and Multiple Sclerosis

Snowfall and Multiple Sclerosis

The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…

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