I’m wearing shorts on October 25th in New York. My windows are open in my house but there is no such thing as global warming. Oh please. This is crazy. https://www.accuweather.com/en/us/new-york-ny/10007/october-weather/349727. In case you actually care, everyday it’s been higher than normal this October. I always said I wanted weather like San Francisco 70 degrees and beautiful each day, guess I’m getting it except we get humidity. Yesterday was so humid and MS doesn’t like humid. It’s like starting five steps behind before you even begin the day. I skipped physical therapy because I knew I’d just be too fatigued from the weather in combination with the exercise I’d be done for the entire day. Wasn’t worth it. The heat isn’t the only factor that makes a day difficult, the humidity plays a role. Even today, sun shining, temperature has dropped, but there is still moisture in the air and my body feels it.
I wish it was simple with MS like here is your diagnosis and here is a card describing the next 10 years of your life and what to expect. Then each 10 years you get another card. Wouldn’t that be helpful? I am sure many people would love index cards with life instructions, wishful thinking. Truthfully, I just wish I’d stop progressing. It has nothing to do with weather but the weather just makes each symptom and my weaknesses more obvious. My thigh muscles are starting to atrophy more and more each day. Where I couldn’t get off the floor when I was fatigued from a workout, now is an everyday occurrence. That’s why I’ve written about the wheelchair because writing about it is my first step in accepting. Falls are becoming more and more not only dangerous for risk of hurting myself but risk of not being able to get up again. I have the med-alert system again. Worn on my wrist at all times. It isn’t just in case now it’s for when….
I see my MS specialist on November 7th. Ocrevus has just started, I doubt we’d change drugs yet but I don’t know what she’ll say. I don’t know what other drug choice is out there to even switch too, I’ve been on many. It is what it is. Right now I just want a normal October day to throw on my super comfy sweatshirt and that isn’t happening. The weather shouldn’t be affecting my MS and it is, so it’s enough now. Bring the chilly air, I’m ready.