When will I learn, I can’t do that!!!!!

When will I learn, I can’t do that!!!!!

I think I can still do things but I can’t. Today was one of those mornings. My coffee pot broke. I have one being delivered today from Amazon. I wanted to go to a local drive thru place to get a cup of coffee. Well after my fall on Sunday night, nobody wants me to leave the house my house without help. That’s still not a feasible requirement since the increased nursing hours are a few weeks away. Anyway, that…

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My first Ocrevus infusion

My first Ocrevus infusion

The appointment was called for 11 but as I’m walking out my door, I received a call that they still didn’t have the pre-medicine orders from my doctor. After  that call was made, yet again, they informed me I can come at 12:00. I got there and it just took time to get things rolling. Except for a TV and a comfy chair, it was an institutional type of room. However, the people were very nice. I knew exactly what…

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Things that go bump in the night, or the concrete.

Things that go bump in the night, or the concrete.

I got back from my sisters at close to 8pm last night. Whenever I go away and the trip ends, the highlight to coming home is seeing my dogs. No big shocking news there,especially if you follow my blog. I stepped out of my car and looked up at my window to wave hello to my marshmallow howling in the window. I do this every time I come home since his face started looking out for me. Well, unfortunately, last…

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Easy Vegan Tomato Sauce

Easy Vegan Tomato Sauce

Another garden recipe from my sister. Ingredients 1 pint cherry tomatoes1 pitted date1 Tablespoon olive oil1 Red bell pepper seededSalt to tasteBasil optional Directions: Put all ingredients in blender and tada. Really yummy

Zucchini Soup

Zucchini Soup

Hanging at my sister's and brother-in-laws for the weekend. They have an unbelievable garden. They grew these gigantic zucchinis. Today they are making soup for me to bring home. Really easy to do. Directions:-Cut zucchini into large chunks and place in roasting pan-Baste each piece with olive oil-Add chopped garlic, salt and pepper-Roast for about 30 minutes until zucchini starts to caramelize and soften -Add roasted Zucchini and anything left pan to blender-Blend up and enjoy

If I didn’t have MS

If I didn’t have MS

What do you say? Is it easy to imagine a different life? A life where you weren't sick. A life where walking wasn't difficult. A life where you can feel if your hair was dry or damp or your clothes are cotton or silk. Each year that goes by the image fades a little more. I've had MS for so long I can't imagine my life without it anymore. The girl who didn't need a walker passed away over 3…

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MS Fatigue…still the worst symptom

MS Fatigue…still the worst symptom

It's better now or I wouldn't be able to write this blog post. I'm a happy passenger in the car, going to visit my sister for the weekend. My day started at around 6 when I woke up but laid in my bed meditating. I like doing that on my coach better but why waste the time laying there in my bed. I purposely showered and did my hair yesterday so I wasn't rushed this morning. It never fails a…

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Breaking the Habit-Linkin Park

Breaking the Habit-Linkin Park

This one is for someone in particular. Wanted to say I miss being your friend and being in your life and you being in mine. I know that it has to be this way for both of us. I respect where we both are in our lives. I like knowing you read my blog and you are still there in the background. Know that I’m there as well. This is my favorite band Linkin Park a fun song with a…

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What’s going on in a day in the life with multiple sclerosis

What’s going on in a day in the life with multiple sclerosis

My Ocrevus infusion is going to be on Monday August 14 now. Not the worst thing. My infusion for Rituxan was scheduled originally for July 17th so the change to the new drug set us back roughly a month. My neurologist told me that even though Rituxan is given on a six month schedule, the drug could last up to 9 months effectively. I feel fine and now I only have 5 days to receive an infusion so I am…

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Mammogram scare for no reason

Mammogram scare for no reason

Last Monday I had my routine mammogram. I never worry because to me, I already had multiple sclerosis, that was more than enough. However, I do have to admit, that my fingertips have no tactile feeling so I worry that I may not feel anything on a self breast exam. Last week I was so preoccupied and stressed dealing with the approval of my Ocrevus infusion that when I got a message from my doctor about the mammogram, I was completely…

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